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Sign upMy Name'5 Doddie Foundation is committed to your privacy. The aim of this privacy policy is to provide a clear explanation of how we collect, use, disclose, transfer, and store your information when you use the Doddie Aid app or website.
For corrections or confirmation on what data we store on you, to request a copy or to have us remove you from our records please contact us at info
The Doddie Aid Privacy Policy describes how My Name'5 Doddie Foundation collects, uses, and shares your personal data on the Doddie Aid app and website.
If you have questions about the legal basis, you can contact us at info@myname5doddie.co.uk
Process Your Transactions
To process transactions, My Name'5 Doddie Foundation must collect data such as your name, address, email and payment information.
My Name'5 Doddie Foundation retains your personal data only for so long as necessary to fulfil the purposes for which it was collected, including as described in this Privacy Policy or in our service-specific privacy notices, or as required by law.
My Name'5 Doddie Foundation shares your personal data with service providers who act on our behalf, our partners, or others at your direction when using our platforms.
Service Providers and partners
Doddie Aid may engage with platform native and third parties to act as our service providers or partners and perform certain tasks on our behalf, such as delivering products to you and securing transactions for you.
My Name'5 Doddie Foundation service providers are obligated to handle personal data consistent with this Privacy Policy and according to our instructions. They cannot use the personal data we share for their own purposes and must delete or return the personal data once they've fulfilled our request.
Beacon, http://www.beaconcrm.org Beacon is a CRM system developed for charities, this is where we store your personal data
Fetchify, https://www.fetchify.com/ Fetchify is an address verification tool. We use this for postcode search in the Doddie Aid app
Google Analytics, https://analytics.google.com/ Google Analytics is a web analytics service offered by Google that tracks and reports on our website traffic
Justgiving, https://www.justgiving.com/ Justgiving provides a method to fundraise or donate, helping us as a charity to make more with GiftAid
Mailchimp, https://mailchimp.com/ Mailchimp is a platform for creating mailing lists and email marketing campaigns and automation to those subscribed. We use mailchimp for our regular newsletters and for Doddie Aid campaign updates
MODX https://modx.com/ MODX is a CMS platform and holds the backend of the Doddie Aid app and website
Sendgrid, https://sendgrid.com/ Sendgrid is an email marketing provider for managing our email campaign communication relating to the Doddie Aid app
Stripe, https://stripe.com/ Stripe is payment processing software and application programming interface for our mobile application
Shopify, https://www.shopify.co.uk/ Shopify is an online store platform providing a secure method of completing transactions.This is used to process and send your snood order to our merchandise partner
The Cycle Jersey https://www.thecyclejersey.com/ is an online apparel store. The Cycle Jersey dispatch snood orders
1.1 The website www.doddieaid.com is operated by My Name'5 Doddie Foundation (Charity Number SC047871) ("we", "us", "our"). My Name'5 Doddie Foundation exists to raise funds to aid research into the causes of motor neuron disease, to investigate potential cures, and to make grants to individuals who are suffering from the disease to enable them to live as fulfilled a life as possible.
1.2 We are a "data controller" for the purposes of the EU General Data Protection Regulation 2016/679. This means that we are responsible for, and control the processing of, your personal information. We take your privacy very seriously and we ask that you read this privacy notice carefully as it contains important information on what personal information we collect about you, what we do with that information, the situations in which we may share your information with other parties and how we keep your personal information secure.
We collect personal information from you when you:
(2.a) visit our website;
(2.b) subscribe to our newsletter;
(2.c) make a donation via the website;
(2.d) contact us by post, email, telephone or through our website; and/or
(2.e) contact us through our social media platforms such as Facebook and Twitter;
(2.f) register and place a snood order through the Doddie Aid app;
(2.g) make a donation via the Doddie Aid app;
(2.h) make a purchase via our partner merchandise sites.
3.1 The personal information collected includes your:
(3.1.a) full name;
(3.1.b) postal address;
(3.1.c) tax payer address;
(3.1.d) gender;
(3.1.e) date of birth;
(3.1.f) email address; and
(3.1.g) payment information such as bank account details (where you donate directly to us via Bank Transfer or cheque)
3.2 Please note that if you make a donation via the Doddie Aid app or via the website online or by text, your donation and personal information (including your payment information) will be processed by the third parties that offer these services (Stripe, Just Giving).
3.3 When you use our website, we will also collect your IP address and information on an ongoing basis about what pages you access or visit, and information about your use of our website, for example, the pages viewed or the website from which you came to visit our website, including by use of cookies (see below for cookies information).
3.4 Camera photograph
On the Doddie Aid app permission to use your camera to take a photo or access your files to upload a photo is requested - use of this is purely for profile avatar sole use only and not used for any other purposes.
We may use your personal information for the following purposes:
(4.a) If you have opted in to receive marketing updates - in order for us to communicate with you, including sending you information about news, events, sponsorship opportunities or other information which we think you may find interesting using the email address which you have provided. You can opt out of receiving marketing emails from us at any time by clicking on the unsubscribe link at the foot of one of our emails.
(4.b) to comply with any legal obligations to which we are subject;
(4.c) improve and update our website and Doddie Aid app, or customise our website or Doddie Aid app and its content to your particular preferences;
(4.d) to process donation transactions with third parties i.e JustGiving & Stripe
Our website and Doddie Aid app is not intended for use by children under the age of 18 and we do not knowingly collect or use personal information relating to children.
We will only use your personal information where it is permitted by law and where:
(5.a) we need to use your personal information to comply with our legal obligations;
(5.b) you have given us consent to use your personal information (if consent is needed); and
(5.c) it is reasonable for us to do so and there is no disadvantage to you or risk to your personal information;
(5.d) we need to use your personal information to process on your behalf with a partner.
6.1 Where necessary, under your direction, whilst using our services we may require to pass your details to the following parties:
(6.1.a) service providers, native and third party partners, who process and store data on our behalf, under your direction;
Beacon, http://www.beaconcrm.org Beacon is a CRM system developed for charities, this is where we store your personal data
Fetchify, https://www.fetchify.com/ Fetchify is an address verification tool. We use this for postcode search in the Doddie Aid app
Google Analytics, https://analytics.google.com/ Google Analytics is a web analytics service offered by Google that tracks and reports on our website traffic
Justgiving, https://www.justgiving.com/ Justgiving provides a method to fundraise or donate, helping us as a charity to make more with GiftAid
Mailchimp, https://mailchimp.com/ Mailchimp is a platform for creating mailing lists and email marketing campaigns and automation to those subscribed. We use mailchimp for our regular newsletters and for Doddie Aid campaign updates
MODX https://modx.com/ MODX is a CMS platform and holds the backend of the Doddie Aid app and website
Sendgrid, https://sendgrid.com/ Sendgrid is an email marketing provider for managing our email campaign communication relating to the Doddie Aid app
Stripe, https://stripe.com/ Stripe is payment processing software and application programming interface for our mobile application
Shopify, https://www.shopify.co.uk/ Shopify is an online store platform providing a secure method of completing transactions.This is used to process and send your snood order to our merchandise partner
The Cycle Jersey https://www.thecyclejersey.com/ is an online apparel store. The Cycle Jersey dispatch snood orders
(6.1.b) professional advisors and consultants;
6.2 We may also share your personal information with third parties if we are under a duty to disclose or share your personal information in order to comply with any legal obligation, or in order to enforce or apply any contract with you or to protect our rights, property, or safety of our employees, customers or others.
We will generally only keep your information for as long as necessary for the purpose for which it is collected, or where we have a legal obligation to keep information for a certain period of time. For example, where you make a donation directly to us (via Bank Transfer or by cheque) and/or you complete Gift Aid, we keep your personal information for up to seven (7) years for tax purposes in line with HMRC guidance, and also in line with guidance from the Institute of Fundraising.
Our service providers native and third parties are outlined below and their origins highlighted.
Beacon, http://www.beaconcrm.org/ (UK)
Fetchify https://www.fetchify.com/ (UK)
Google Analytics, https://analytics.google.com/ (USA)
Justgiving, https://www.justgiving.com/ (UK)
Mailchimp, https://mailchimp.com/ (USA)
Modx, https://modx.com/ (UK)
Sendgrid, https://sendgrid.com/ (USA)
Stripe, https://stripe.com/ (USA)
Shopify, https://www.shopify.co.uk/ (CANADA)
The Cycle Jersey, https://www.thecyclejersey.com/ (UK)
Data protection laws give you a number of rights as listed below. If you would like to exercise any of your rights, please contact us using the details at section [12] of this Notice.
(9.a) Right to object: You have the right to request that we stop processing your personal information. Upon receiving the request, we will contact you to tell you if we are able to comply or if we have legitimate grounds to continue. If data is no longer processed, we may continue to hold your data to comply with your other rights.
(9.b) Right to access: At any point you can contact us to request the information we hold about you as well as why we have that information, who has access to the information and where we got the information. Once we have received your request we will respond within one month.
(9.c) Right to withdraw consent: You may withdraw your consent at any time. Please contact us if you would like to withdraw your consent and we will delete your data in line with your right to erasure.
(9.d) Right to rectification: If the data we hold about you is out of date, incomplete or incorrect, you can inform us and we will ensure that it is updated.
(9.e) Right to erasure: If you feel that we should no longer be using your data or that we are illegally using your data, you can request that we erase the data we hold. When we receive your request, we will confirm whether the data has been deleted or tell you the reason why it cannot be deleted.
(9.f) Right to portability: You have the right to request that we transfer your data to another controller. Once we have received your request, we will comply where it is feasible to do so.
(9.g) Right to complain: You can make a complaint to us by contacting us using the details at section [12] of this Notice. Alternatively, you may make a complaint to the UK supervisory authority, which is the Information Commissioner's Office, by visiting their website at www.ico.org.uk, by phoning 0303 123 1113 (local rate) / 01625 545 745 (national rate), or by writing to Information Commissioner's Office, Wycliffe House, Water Lane, Wilmslow, Cheshire SK9 5AF.
We will treat all of your personal information in strict confidence and we will take all reasonable and appropriate steps to keep your personal information secure once it has been transferred to our systems. We adopt appropriate data collection, storage and processing practices and security measures to protect against unauthorised access, alteration, disclosure or destruction of your personal information. Please note that whilst we take reasonable steps to prevent any breach, we cannot guarantee the security of any personal information you disclose to us. You accept the inherent security risks of providing personal information and dealing online and will take all reasonable precautions to ensure that the security of the personal information you provide to use is not compromised.
11.1 A cookie is a small text file which is placed onto your computer (or other electronic device) when you access our website. We do not use cookies on the Doddie Aid app. We use cookies on this website to:
(11.a) recognise you whenever you visit this website;
(11.b) obtain information about your preferences, online movements and use of the internet;
(11.c) carry out research and statistical analysis to help improve our content, products and services and to help us better understand our user requirements and interests;
(11.d) target our marketing and advertising campaigns more effectively by providing interest-based advertisements that are personalised to your interests; and
(11.e) make your online experience more efficient and enjoyable.
11.2 In most cases we will need your consent in order to use cookies. The exception is where the cookie is essential in order for us to provide you with a product or service you have requested.
11.3 If you visit our website when your browser is set to accept cookies, we will interpret this as an indication that you consent to our use of cookies and other similar technologies as described in this section. If you change your mind in the future about letting us use cookies, you can modify the settings of your browser to reject cookies or disable cookies completely.
11.4 The table below provides some information on the cookies which we use on our website:
|
Cookie Name |
What it does |
Why is it used |
How long it lasts |
|
_ga |
Google Analytics: tracks browsing behaviour within the website |
To improve content and performance |
1 year+ |
|
_gat |
Google Analytics: tracks browsing behaviour within the website |
To improve content and performance |
Browser session |
|
_gid |
Google Analytics: tracks browsing behaviour within the website |
To improve content and performance |
1 day |
11.5 If you do not want to accept cookies, you can change your browser settings so that cookies are not accepted but this will impact the user experience. If you do this, please be aware that you may lose some of the functionality of this website. For further information about cookies and how to disable them please go to the Information Commissioner’s webpage on cookies: https://ico.org.uk/for-the-public/online/cookies/.
If you have any questions about this notice or our use of your personal information, please contact us:
By email at info@myname5doddie.co.uk
Or by post at:
My Name'5 Doddie Foundation
c/o Gilson Gray LLP
29 Rutland Square
Edinburgh, EH1 2BW
We may change this Notice from time to time and would advise you to check it regularly. We will let you know when we make any material changes to this Notice by means of notice on our website homepage.
My Name'5 Doddie Foundation will ensure that all personal data that it holds will be:
Processed lawfully, fairly and in a transparent manner;
Collected for specified, explicit and legitimate purposes and not further processed in a manner that is incompatible with those purposes;
Adequate, relevant and limited to what is necessary;
Accurate and kept up to date;
Kept in a form which permits identification of data subjects for no longer than is necessary;
Processed in a manner that ensures appropriate security of the personal data, including protection against unauthorised or unlawful processing and against accidental loss, destruction or damage.
If found to be abusing the Doddie Aid app or website in any form strict action will be taken, including account deletion and account ban.
Details of who owns the rights to the Doddie Aid app - © 2024 My Name’5 Doddie Foundation. All rights reserved.
The name Doddie Aid, its logo, and all material on this site are the intellectual property of My Name'5 Doddie Foundation and subject to copyright or other intellectual property protections. All such intellectual property of Doddie Aid, including its trademarks, names, copyright in all its material, registered designs, logos, and any other intellectual property rights derived from the aesthetics or functionality of the Doddie Aid app remains the property of My Name'5 Doddie Foundation. By using the Doddie Aid app you agree to respect the intellectual property rights of My Name'5 Doddie Foundation and will refrain from copying, transmitting, reproducing, printing, or exploiting for commercial purpose any material contained within this website except with the prior written consent of My Name'5 Doddie Foundation.
The name and the logo of Doddie Aid may be copied for strictly charitable use only on the conditions that copyright and source indications are also copied and referenced, no modifications are made, the document is copied entirely, and that such use complies with My Name’5 Doddie Foundation’s brand guidelines. However, some documents and photos have been published on this site with the permission of the relevant copyright owners (who are not part of My Name’5 Doddie Foundation). All rights are reserved on these documents and permission to copy them must be requested from the copyright owners.
Please report any suspected unauthorised use of the intellectual property of Doddie Aid or My Name'5 Doddie Foundation (including without limitation its trademarks, trade names, and logo) to My Name’5 Doddie Foundation at info@myname5doddie.co.uk
This Legal Notice was last amended in November 2024.
Download the app or use the web version. Simply follow the link below:
Sign upSC 047871
Email: info@doddieaid.com
c/o Gilson Gray LLP
29 Rutland Square
Edinburgh, EH1 2BW
© 2024 My Name’5 Doddie Foundation. All rights reserved
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